He was a boy who wanted to fit in and be loved and accepted by others, to "be normal". He was sensitive, intuitive, empathic,creative and a kinesthetic, visual learner. He had many gifts including a deep compassion for others.

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He and his family experienced Ben's illness alone. Only those closest to him saw, felt and connected to the devastation and challenges that he and his family suffered through. Very few resources and tools were accessible to Ben and his family to help them cope with the challenges they all faced as a result of Ben's illness.

Click here for Ben's complete story